The Zimmerman family (Cheryl, Keith, Ryan and Shawn) would like to tell you how their lives have been affected by Multiple Sclerosis (MS) over the past 24 years.
Cheryl’s perspective:
The year is 1985 before the symptoms of MS began. I was leading what most would consider a normal life for a newly married, young, working mother. A typical day for me included: getting up, taking a shower, dressing, brushing my teeth, getting a one-year old ready, fixing and eating breakfast, driving to day care and then on to a full day with my first grade class.
A year later in 1986 my body started to change. It started with a tingling in the little finger on my left hand. This tingling eventually progressed to the entire left side of my body. During this year I went to many doctors and had numerous tests preformed. The tingling would at times get worse or go away completely. The doctors and my family were baffled!
Over the next four years, even though I didn’t know it, I began my battle with MS.
Now it is 1990. We owned and operated a Fitness Center in Edenton, North Carolina where I taught aerobics classes. We now had two energetic boys, and I performed the daily responsibilities of taking care of a family. My symptoms returned and continually got worse.
In 1991, we left North Carolina and moved to Virginia Beach where I became a special education teacher. Over the next four years the doctors and tests continued. MS, along with other diseases such as lyme disease, are now being suggested as to what may be wrong with me, but none of the doctors or tests could say for sure what I had. Finally, in 1995 the neurologist uttered the words “You have Multiple Sclerosis”.
1995 to 2000 were very challenging years for me and my family. I walked with a slight limp, I fatigued very quickly, and the heat and cold had a tremendous effect on my body. I was losing my ability to function, I was going back and forth between using a walker and a wheelchair, I had lost my fine motor skills, I was to the point that I was afraid to drive, I was fighting for my life and losing! In 2000, I was not able to function as a teacher and my symptoms forced me to retire.
My MS has progressed to the point that I can no longer care for myself and I rely on caregivers for all my daily needs. A typical day for me now includes: someone getting me up, someone giving me a shower, someone dressing me, someone brushing my teeth, someone fixing and feeding me breakfast, and doing everything else for me for the rest of the day. My current challenges are finding competent caregivers and surviving in a world which has little time or patience for the handicapped.
Keith’s perspective:
After almost ten years (1986 to 1995) of countless tests and doctors – we had an answer. We had no idea what MS was! It was a double-edged sword – the doctors told us what Cheryl had, but could not tell us how she got it. We didn’t know if it was going to get better or worse, and there were very few medicines for people suffering with MS. As we became educated about MS, we learned that some people go through life with very few symptoms, some people like Cheryl get progressively worse, yet some people go blind and become bed-ridden in literally months. I think that is when Cheryl and I went through some of our hardest times, not so much physically but emotionally. Now we knew what to call her symptoms but had no control over what was going to happen next. Learning to control your emotions and conditioning yourself to handle whatever the future may bring can be a daunting task!
So here we are. In a short 24 years, our lives have progressed to what we have told you. Yet we are the lucky ones! We have each other, we are blessed with two wonderful sons that support us is many ways, we have an extended family that helps us, we have friends and neighbors that help when needed and keep us sane. Cheryl and I often talk about the people that are suffering with MS that don’t have this kind of support.
Now the doctors and tests are better able to diagnose MS. Now the people that have a tingling in their little finger have a chance of new procedures and medicines. These new medicines and diagnosing procedures take dedicated people and money! Having lived through this and knowing this prompted us into action. In 2006 Cheryl, Ryan, Shawn, and I, with a handful of dedicated volunteers, founded The ziMS Foundation. The Foundation has two main goals: raise money and raise awareness! The Foundation has two missions: use that money toward research to find a cure, and to help people with MS survive in their daily lives.
Ryan’s perspective:
MS is a disease quite close to my heart. In 1995, my mother Cheryl was diagnosed with MS, a chronic and unpredictable disease that affects the central nervous system. MS affects roughly 400,000 Americans and can impact the body in almost as many ways. I look at my Mom’s condition as an influence on my development as a person. It forced me and my brother, Shawn, to assume responsibilities in our home at an earlier age than most of our peers.
As President of the ziMS Foundation, I am excited by the prospect of giving back to my community and finding a cure for this unpredictable disease. My family has given me the support to fulfill my dreams. The Washington Nationals have given me the opportunity to play the game that I love at the highest level in our nation’s capitol. I am thrilled to have launched a foundation that I hope can make a real impact in the life of my family as well as many others afflicted by MS.
In 2009 and 2010, I donated $200,000 to the Foundation. I also obtain autographed memorabilia from professional athletes which are auctioned off at the Foundation’s Annual Gala. Through my public appearances, I am able to promote the Foundation and help to “bring home a cure” for MS.
Shawn’s perspective:
Without a doubt, living with MS has its ups and downs. My mom would never let us look at the negative aspects of how the disease affected our lives. Her attitude was always upbeat and positive. Doing the laundry, cooking and cleaning as a kid was tough to handle sometimes, but all those jobs made me grow up a little faster and learn to handle life’s responsibilities sooner.
To tell you the truth, it helped me a lot through high school and especially in college! I was the guy that everybody came to with questions because they knew I would have the answer. How to clean this, how to wash that, and what to cook for dinner were questions I was asked on a daily basis. I was “Emeril Lagasse” for my roommates because of the culinary skills I gained while cooking when my mom couldn’t. I also taught a lot of people how to do laundry as well. So, between the adversities that arose from my mom having MS and the positive attitude my mom instilled in me without a doubt made me into the person I am today.
The ziMS Foundation:
The Foundation is dedicated to the treatment and ultimate cure of MS by funding comprehensive support and educational programs. Over the last five years the Foundation has raised more than $500,000. www.zimsfoundation.org
Article taken from BAMS (Band Against MS)
Allow me to introduce myself. My name is Carrie Latham and I am the team captain of Carrie’s Crew. Our team has walked for 7 years for the National Multiple Sclerosis Society – Hamptong Roads Chapter. In these years we have become more and more successful each year raising money with various fund raising events. Two years ago we were awarded the Gold Member award for raising over $3500.00!
This charity is super important to me because I was diagnosed 11 years ago with MS. This disease can be very unpredictable and you never know when a “flare up” will occur, as you know. I’ve had it effect my mobilization and my eye sight. Although I am very grateful for the fact that there are medications to help detain the disease, there is still not a cure. For the past 11 years I have been injecting my medicine every other day. I long for the day when there will be a pill form of medicine or even better, A CURE!!
The Carrie’s Crew Golf Outing will occur this year on June 3, 2011 at Stumpy Lake Golf Course. I hope that I can count on your support. With the unpredictability of this disease, those of us who are living with it need to do what we can, while we can.
This event is in conjuction with the MS Walk that is occuring on April 10, 2011. My husband decided to plan this event and we’re just reaching out to anyone and everyone trying to raise as much money as possible for a cure that is so important to us. Any kind of support from ziMS would be GREAT! Whether it be items for raffle baskets/door prizes or donations, please know that it will go towards a cause that is important to both of us. I’d also love to send you a copy of the sponsorhip flier as well.
For you guys as children of a parent who has MS, it helps me to know the difficulties that my children may be facing as they live with me. Thank you for posting this blog.
Thank you in advance for you time. Should you have any questions, please feel free to contact me at 757-644-9202.
Keith, Cheryl & Family:
After reading this, I was moved. But knowing many members of your family from the 1970’s in PVHS, this commentary has really hit home in my heart. What has touched me is the bravery shown in your everyday lives; all of you. Both the Zimmerman & Wallace families have always been very proud, grounded and athletically gifted (from Scott Wallace & Keith’s basketball days, Cheryl’s field hockey & basketball, Craig’s skateboarding, etc.) clans. This obviously has carried over through your lives and into your children’s lives. My thoughts and prayers are with you.
Hello Ryan…
During this evenings Marlins/Nationals game, my husband Dr. Alan Galbut caught a tidbit about your foundation and that your Mom has been battling MS. He immediately googled it and was impressed by what you are doing for people with Multiple Sclerosis.
I consider myself to be a “Real Expert Living with MS” since my diagnosis nearly 20 years ago. My 1st charity MS Home—now the MS Center of SWFL that I cofounded in 2000 with my fellow MSer Lisa Luthringer RN, MSN provides Wellness Services (Massage Therapy, Acupuncture, Physical Therapy, Equine Therapy, Aqua Therapy) to individuals afflicted with MS. While we are all waiting for a CURE, we must learn to embrace this devastating disease and continue to LIVE. Survival is dependent on adaptation and accommodation. In 2007 Lisa & I cofounded our 2nd charity the HEIL LUTHRINGER FOUNDATION for MS Education to provide critical knowledge to MS patients, their families & caregivers and the medical community. Please let me know if I can be of assistance to you and your organization. I would be happy to share my expertise and give encouragement to your Mother and others struggling with MS.
Together we can make a difference!!!
With hope, love & faith…
Dr. Debbie Heil
Naples, Florida
My name is Carol Eyler. I was diagnosed with MS in 1993. Being a mother of 3, a soccer coach, a softball player and an aerobics instructor, I had to make many changes in my life.
I think the hardest part for me was not being able to run anymore. According to my current neurologist I’ve been very lucky. Since my most recent “flare up” I’ve been having a lot of trouble walking. I don”t need a cane or walker yet but do try to stay away from stairs. I currently work full time as a secretary and was lucky enough to have my desk moved to the first floor for the time being. They also put in handicapped parking spaces!!!
After becomming a Nationals fan last year, it was unbelieveable to watch a pre-game show on MASN showing Ryan Zimmerman talking about his mother and his foundation. I now have a new Nationals favorite player. I know how hard it must have been for him growing up.
Like Ryan’s mom I too have an optimistic outlook on life. I know that I have to live one day at a time and deal with life one day at a time. I feel blessed that I have been able to continue to work and basically be able to take care of myself. I also know that at any time I too could become wheelchair bound. Having MS definitely makes you have a different outlook on life.
I am so happy to hear that Ryan’s foundation is raising money for finding a cure for MS. His mom should be glad to hear that there is now a pill that can be prescribed for some types of MS. After years of trying different types of self-injections, my newest doctor has prescribed a pill I’ll need to take every day.
I will keep Cheryl and her family in my thoughts and prayers.
Dear Ryan
I was very moved by your blog describing the life of your mother dealing with MS. I am a mother, 75years old, dealing with a son living with MS for 25 years (a parent’s worst nightmare caring for a sick child). To help me cope, in addition to being a caregiver (in addition to a live-in aide 24/7) I have been a team captain for the MS Walk in NYC, raising $10,000-19,000 personally each year over the last 18 years.
I wish you continued success and hope in the near future we can see a cure for this dreaded disease.
Barbara